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Our Story of Hope- Robinson Family (Kylie Noel)

In May of 2014, our family of five celebrated our little girl, Kylie Noel’s, 4-month milestone with a healthy doctor check up, her first photo shoot, and a family getaway to Dallas to visit her uncle at college. Kylie was a wonderful sleeper, sleeping through the night at around two-weeks-old. She would nap just about anywhere. I even have a picture of her napping, wrapped up in her favorite blanket in the front of a store basket while shopping for our church women’s retreat. She was the first of our three babies to love sleeping on our chests – such a snuggle bug. The most laid back & outgoing baby girl full of hearty giggles. Kylie loved being held by anyone that wanted one-on-one time as she gave them her full captivation. She adored and was equally adored by her 5-year-old big sister, Peyton, and 6-year-old big brother, Jonah. Peyton and Jonah being so close in age, we hadn’t yet gotten to see them in such a care-taking, gentle, and adoring way like they were with Kylie. They just melted around their baby sister. 

This is the only family picture we have with Kylie; it was a random picture we took in a coffee shop late one night during a trip. Such a treasured picture!

On May 3, we spent the day like most Saturdays, cleaning up the house and running errands. We were also preparing to celebrate my husband, Dennis’, birthday with a party in our home the next day. Little did we know that normal, mundane, routine day was filled with all of our beautiful little Kylie girl’s “last everything.” We had a marital squabble first thing. Such a waste of precious time. Kylie kept smiling and coo-ing at us and we quickly got over it and resumed our day’s plans. 

That evening, we had our nephew over for a sleepover and popped some pizzas in the oven. I had decided to run a few last minute errands during Kylie’s last nap. As I prepared to head out, I got a bottle ready for her daddy to feed her and lay her down. She kept coo-ing & smiling at me, as though to tell me to stop and spend a few minutes with her. So, I put my purse down and stayed to feed her before running my errands. That’s the moment I play over and over again in my head. So thankful I stopped and fed her that last bottle as we cuddled and looked into each other’s eyes that last time. I can still remember the fullness of her body in my arms. At times, I can still feel the weight of her body against my chest and the warmth of her head in the crook of my neck as I burped her one last time. I kissed her chubby cheeks, handed her to her daddy and left for the store. 

That was it. Those were my last precious moments with my baby girl. The next moment I would look upon her would be the most traumatic moment of my life. 

Around 9pm, I returned home and was enjoying a chat with my husband. I got a bottle ready while Dennis went to wake her. Our entire lives and perspectives changed those next few moments. Kylie wasn’t breathing. Dennis yelled for me to call 911. He began CPR and continued until the first responders arrived and let him know he could stop. She was gone. She had passed away shortly after falling asleep. The rest of that night was a blur. Our front yard was covered with officers, emergency personnel, fire trucks, ambulances, crime scene investigators, and a constant coming and going of neighbors, friends and family; everyone in shock and no one being able to help our little girl or change our reality. We weren’t allowed back into our home until it had been thoroughly investigated. So, we sat outside in the midst of our sudden grief. But in that deep, dark-pit moment, we caught a glimpse of peace and hope – God, our Faithful Father, showed up. The full moon shone on the Easter cross still in our front flowerbed and illuminated the words written on it, “He is Risen!” We felt God comforting us in a way only He can. Because His Son, Jesus, defeated death and is alive and well, our daughter was alive and well and in His presence! We WOULD see her and hold her again! This was NOT the end!

“Soon the world will no longer see me, but you will see me. Since I live, you also will live.”Jn 14:19

“Yes, we are fully confident, and we would rather be away from these earthly bodies, for then we will be at home with the Lord.” 2 Cor 5:8 

The following weeks consisted of the most unnatural moments and events any parent should never have to live through: not being able to pick up or move our own child until she and our home were cleared by the investigators, meeting at the funeral home to pick out a tiny casket, planning her memorial and burial, finding every picture we could of her, and choosing the last precious outfit from her closet she would wear here on earth. The coroner’s report arrived and we were told that they found no fault or reason to explain why she had passed and determined it to be SIDS. Through the shock and fog of that night, the Lord spoke clearly to our hearts that this tragedy would not be meaningless. (2 Cor 4:17) Her life has great purpose! Satan would not win in her life story! We vowed to share her story and the hope and peace our heavenly Father gave us; a hope and peace that TRULY surpasses all understanding, one moment at a time. 

By the grace of God, we welcomed our precious rainbow baby girl into our family about one year later. Piper Noel (named after her big sister in heaven) has been a miraculous gift of grace that has brought so much healing to each one of us in so many ways. 

Our family with Piper; our rainbow baby.

Our grief still comes in waves and many times unexpectedly but, those waves aren’t as rough or as often as they used to be. Although there are more days of joy than pain now, our hearts and arms will always ache for our little Kylie Noel and for our family to be complete again. So, with God’s strength, we choose daily to find joy in our HOPE through Jesus, to remember that this will not be forever and that we will be complete again one fine day in Glory! 

Each day, we are One Day Closer to Glory!

The Calm in the Storm

One thing I’ve learned first hand, and observed over the past few years in connecting with other parents who have lost a child is this:

A content heart amidst a storm is a powerful thing!

Often times we live in the ‘if only’ scenarios:

If only I could stay at home with my kids…

If only we made more money…

If only I could get pregnant…

If only my baby would sleep through the night…

If only my kids were all in school…

If only I could send my kids to a different school…

If only I could live somewhere else…

If only my child would not have died…

If only… then I’ll be content. 

We’ve all been there, we’ve all had those thoughts. But what I’ve come to realize is that God calls us to be content (a state of peaceful satisfaction) amidst the storms.

While it may not be easy, one thing is certain, if you can find contentment in your current storm, you can break fear of the future; as Proverbs 31:25 says, “she can laugh at the days to come…”

Sometimes God allows storms as a way to show His power. He allows storms to show His glory and his peace. He allows storms because He wants to show us there is a better way to live. He even allows storms to protect us.

Are you in a season of waiting, a season of grief, in the middle of a storm?

I’d encourage you to pray for one thing… Lord teach my heart to be content.

One of the quickest ways to a content heart is setting healthy boundaries and guarding our hearts.

A content heart is a guarded heart.

Proverbs 4:23 “Above all else, guard your heart, for everything you do flows from it.”

We are told to guard our hearts, because everything we do and say is an overflow of what is in our hearts. Take some time and ask yourself these questions…

  1. Who do I need to guard my heart from (friends, family, neighbors)?
  2. What things do I need to guard my heart from (Facebook, Instagram, other social media, T.V. shows, magazines, etc.)? How do those things make me feel about myself?
  3. Who and What do I need to surround myself with? Who and what will speak life? Encourage my heart? Believe in me? Inspire me? Challenge me? Bring out the best in me?

The key to a content heart is a guarded heart. The key to a guarded heart is who and what you allow into your life.

Now this may seem harsh (or even insensitive) to those who are not encouraging or supporting you, but let the Lord deal with them. Often times in deep grief, the energy that we may have had to filter out the negativity is gone, that energy is required to survive the day to day. So what may have possibly seemed ‘selfish’ in the past is actually now ‘self care’. Those who love you and want what is best for you will realize this and maybe even learn to establish boundaries for themselves.

Don’t be pulled in different directions or worried about a thing. Be saturated in prayer throughout the day, offering your faith-filled requests before God with overflowing gratitude. Tell him every detail of your life, then God’s wonderful peace that transcends human understanding, will make the answers known to you through Jesus Christ.

So keep your thoughts continually fixed on all that is authentic and real, honorable and admirable, beautiful and respectful, pure and holy, merciful and kind. And fasten your thoughts of every glorious work of God, praising him always. Follow the example of all that we have imparted to you and the God of peace will be with you in all things.

Philippians 4:4-9

Our Story of Hope- The Warner Family (Taylor)

On November 13th, 2010 our lives changed forever. After attending a gift gathering party for less fortunate children we were rear-ended at a traffic light. The driver’s seat collapsed onto our sweet 17 month old, Taylor Grace, causing severe head trauma. She was put in a helicopter and sent to the hospital where we spent hours asking “Why is this happening?” and “Why would we be punished for donating toys to a good cause?” We just sat by her bed praying for a miracle and that she would somehow wake up. Eventually we realized she had already left and we had to let go. On November 14th she went to be with Jesus. 

There were several questions that continued to run through our minds. I remember Taylor had been a bit of a surprise addition to our family. The two of us were going through some marital struggles and I wasn’t completely excited about adding another child into a less than ideal situation. However, it seemed she was sent to us to help fix our relationship. She was always the sweetest baby with a quiet disposition. She rarely cried, slept through the night almost immediately and was perfectly content playing with her toys while I got things done. Sometimes she’d be sitting in her infant seat patiently waiting for me to chase our oldest around. She never fussed at all. When I’d finally get back to her she’d grin as if to say “you remembered me Mommy” I don’t think anyone ever saw her without a smile on her face. I had nicknamed her our “angel baby” little did we know that’s exactly what she was.  After we lost her I remember asking repeatedly, “why did you send us an unexpected baby just to take her back?” It wasn’t until months later that I realized her presence had a profound impact on our relationship and her loss forced us to depend on one another to keep going. We definitely had our struggles but in the end she brought us closer together. 

The week and months after were a challenge. Our 4 year old son, Jack, struggled the most with the loss of his best friend and reliving the trauma of the accident itself. For several months he wouldn’t speak about her at all, only watched videos on my phone. He spent hours with our family priest and play therapists working through his PTSD. I remember one day he had a breakthrough and finally said out loud with tears running down his face, “they put her in the helicopter and I never got to tell her goodbye” We remember feeling terrible because we debated whether to take him into the PICU to see her. We decided we didn’t want his memories to include her bruised and unconscious, only playing and happy. A few days later he came downstairs and told me “Taylor came to me in my sleep and told me goodbye.” It seemed to heal his broken heart a little but to this day, he’s almost 12, he still struggles with the loss. We’re so thankful he survived that terrible accident but a piece of him died with his sister. We’ve had a constant battle with people who don’t understand how PTSD works in a child. We spent years trying to find him the perfect fit for school and social environments and he’s finally moving forward in a positive manner.

Almost exactly one year after the accident we were blessed with another baby boy, Rylan Taylor. We truly believe he was sent to us around the anniversary to give us time to process the grief of a year passing but also distract us from the pain. We had a Mass said in Taylor’s honor and the following week we had a beautiful addition sent to us from Heaven. He’s wise beyond his years, definitely an old soul, and people have said he must’ve gotten his own brain plus the smarts that Taylor passed onto him that she wouldn’t need anymore. He always knows when one of us needs a cuddle or a funny comment to cheer us up. He was definitely sent at the perfect time for our wounded family.

As Rylan was nearing his second birthday we found out we were expecting yet another baby boy. I’ll be honest when I say that I was a bit heartbroken at finishing out our family with 3 boys and an angel baby girl in Heaven. I wanted another little one to dress in pink and spoil rotten to fill the void that we had from Taylor. I really wanted that close mother-daughter relationship that my mom and I share. However, things would soon change for our family again. At my 20 wk ultrasound we discovered there was no longer a heartbeat in our precious Patrick James. Another tragic event led to more struggles for our family. I remember posting on Facebook that our sweet baby boy had gone to play with his big sister. There was some comfort in knowing he already had someone to take care of him but we were still angry that God would allow us more heartbreak. This time our priest was no longer available to help work through the grief. We had to depend on one another and our faith in God to see us through. We knew there was a reason we lost yet another precious gift but didn’t know what it was at the time. 

Just a few months later we received our answer. We were expecting again, this time a baby girl. It seems that God also had a plan for our family. He didn’t think we were emotionally ready to add pink back into the family. We were blessed with a beautiful baby girl, Finley Joy, in March of 2015. Finley is the exact opposite of Taylor in every way. She’s much more demanding and her physical features are completely different. It’s been amazing watching her grow these past 3 and a half years but there are definitely moments when we look at her and think of the things Taylor missed out on. We often wonder if Taylor would’ve been as obsessed with princesses, pink and all things girly.

We knew we wanted to do something to honor our sweet babies in Heaven but struggled with emotions of opening old wounds. After several years we decided to look into the dangers of Seat Back Failure on back seat passengers, the official cause of death for Taylor. We discovered it’s unfortunately very common and made it our mission to fight for change in government standards to prevent this from happening to another child. We’re still fighting today but have Hope that things will change in the near future. We’ve run several news stories and have many government officials fighting with us to require auto makers to fix their seats and lessen the chance for them to collapse on rear impact. 

We felt that fighting for change with Seat Back Failure was definitely an important mission but we were still looking for another way to honor our babies. That’s when we found Hope Family Care Ministries. Their mission to help other families who are drowning in grief at the loss of their child spoke to us. Our son has really struggled with the loss of both siblings and through Hope he’s starting to see things differently. He no longer feels “singled out” as the only person who has lost a sibling. Now that we were in a place we could discuss our pain with others we wanted to join forces with them and help others who are experiencing similar loss.

The Hope Kids Bags really touched our hearts because everything our son received after the accident is still nearby at all times. He cherishes the gifts he has in remembrance of Taylor and wanted to contribute to others in a similar way. There are nights when I’ll see him cuddling a stuffed animal or reading a book he received almost 8 years ago to connect him with his sister. Our younger children will never know their big sister but they also feel her presence every day. We created an art room in the basement for our middle child. It’s in the same space that we keep Taylor’s possessions and he finds comfort in going downstairs to color or paint and know his sister is with him. Our daughter still isn’t quite old enough to really understand but she knows she has a sister in Heaven and she gets to wear some of her clothes and play with some of her toys. It’s our way of connecting the two girls with one another. We never want our children to lose Hope in the face of grief and struggle so we do our best to keep them connected with the memory of their sister to the best of our abilities. We hope that by sharing our story we can help others find Hope in their own painful stories.

Our Story of Hope- The Ford Family (Everly)

“You have been assigned this mountain to show others it can be moved.” – unknown

The morning of May 2nd started out different than usual in that I didn’t rush.  Everly woke before Major, my 3 ½ year old and I pulled her into bed to nurse.  As I laid there on my side feeding her from my body I took her all in.  I savored her.  I distinctly remember looking into her eyes as she nursed, stroked her hair and thanked God she was mine.  But she wasn’t mine.  Not entirely.  She was on loan and little did I know that loan was being cashed in later that afternoon.

I left for work that day not knowing it would be the last time I would hold my baby girl.  I nursed her before I left because she wouldn’t take a bottle and prayed I could get home to nurse her again without having to pump.  I was the Regional Manager of Georgia for lululemon athletica and my Area Director was flying in that day to visit my stores with me.  I was on a store visit when I noticed I had several missed calls from my husband Josh.  One of the workers came up to me and handed me the store phone.  It was Josh saying in a desperate, frantic voice for me to get home and that Everly wasn’t breathing.  I screamed as I dropped the phone and ran towards the door.  My boss grabbed my things and ran after me asking me what was wrong.  In between groans/screams I told her what he had told me and she drove me to the hospital.  My husband had called me back to tell me to go to the hospital and not to come home.  He would be on his way behind the ambulance.  What he really didn’t tell me was that the investigators were at our house and treating it like a crime scene.  He didn’t want me to have to deal with that.   (My husband is a federal agent and has been on the other side of situations like this.  He knew how to handle law enforcement and shielded me from that side of things)

I arrived at the hospital and someone was waiting for me.  She ushered me down a hallway and another until we passed the emergency entrance.  I saw a gurney and a paramedic standing there.  He wouldn’t look me in the eyes and I knew.  I knew my baby girl was gone.  I screamed, “He won’t look at me.” Over and over until I was hoarse.  The doctors and nurses who worked on her came into the tiny room they put me in conveniently positioned next to the psych ward to tell me the news.  I couldn’t believe it even though I already knew in my heart that what they were saying was true.  She was gone.  It felt like a bad dream.  I hadn’t pumped and my breasts were beyond full.  I was so angry that she wasn’t alive for me to nurse.  My whole body hurt, yearning for her.  My husband arrived shortly after the doctors told me and I howled in pain as we held one another, hot tears streaming down my face.  How in the world was my beautiful, perfect baby girl dead?

Everly was with my trusted nanny Cici the day she passed.  She put her down for her nap like any other day and Everly never woke up.  She passed peacefully in her sleep with no suffering.  She was face up and perfectly fine.  She didn’t suffocate or suffer.  Her autopsy months later came back perfect.  She had nothing wrong with her.  It was a tough blow to hear because it would almost be easier if there was something wrong.

No one can ever prepare you for something like this.  You hear of it happening and yet you never think it will happen to you.  I can honestly say I was one of those people who never in a million years thought that I would lose my child.  Everly was a gift from God.  Through all of this I have come to the realization that God doesn’t take our babies.  He received her that day but He didn’t take her.  I know she is with Him and that does give me some peace.  Grief is THE hardest thing I have ever been given the task of navigating and yet I knew almost immediately that God has a plan and a purpose in all of this suffering.  He will see us through this.  Everyone kept telling me that I can be “Mad” at God.  I have never once been mad at God.  I knew that God cried too that day.  God didn’t mean this to harm me.  The enemy did and I would NOT allow the enemy to win this one.

There’s a quote by a poet named Yung Pueblo that goes like this, “true love does not hurt, attachments do.” He goes on to say that Love cannot cause pain; attachments cause pain.  When the attachments that we create in our minds break, we feel their rupture deeply, how deeply depends on how much we identify with the image that we have created.  This resonated with me so deeply.  I had created the perfect image in my mind of my life with my daughter.  I’d bought clothes sizes ahead never once thinking she would never wear them.  I assumed.  I was confident she would.  I was wrong.  In reflecting on this, all I see when I open that closet is pride.  My pride for my beautiful daughter.  None of it matters.  Actually she hated all of the frilly smocked dresses and large bows I put on her head.  She couldn’t have cared one bit about any of it.  It was my own pride and wanting that bought all of it thinking I would have her here to dress her like a baby doll.  I can’t beat myself up for the images in my mind that never came to fruition or for the fancy clothes.  What I do know is that the images of what would be created more pain for me in thinking about what might have been.  So I choose to remember the love I gave her in the eight months she was here.  The really good happy times that did happen, not the ones that didn’t and never will.  To be present with my son and husband and give them a wife and mother they deserve.  I am still here.  There is still a purpose for my life and I must live it to the fullest.

Everly James Ford is a bright light in this dark world.  She set me on a path of deep spiritual awakening and has brought me closer to our Lord during this than I ever thought possible.  I am forever grateful to be her mother.  I will continue to heal through this and know that I will NEVER get over her loss but will get through it, day by day, minute by minute, second by second.  Each day is different and I take it as it comes.  I recently left my corporate job to pursue my career as a Full time artist.  Everly taught me to take risks and live big.  We are not guaranteed tomorrow and I am living life out loud for her.  My art helps heal me and others.  It is where I find peace in the storm of her loss.  Follow along via Instagram as I continue to post there about navigating the waves of grief.

www.jgfcollective.com

@jillgordonford.art- Instagram

The Forgotten Griever

I’m the forgotten griever and yes there are many of us.

This makes me angry sometimes it’s hard not to cuss.

We hide our emotions away from our parents, because they are already carrying a burden so large over their precious child that has already passed.

My brother was so strong. So much stronger than me. His passing often brings me down to my knees.

I know my mom is hurting and other grown ups are too but I can’t help but shout to God, “Hey I’m grieving too!!!”

I lost my best friend, my side kick, my hero, and now I feel just like a zero.

Oh how he would make me laugh, but now I have a mindset of good things don’t last.

I’m the forgotten griever. I cry silent tears while I sit in fear that one day I will wake up and you also will not be here.

My name is Zachary, I lost my brother Bentley.

I grieve too, please don’t forget me.

This powerful poem was written by Zachary Gelatin age 11 who recently lost his brother Bentley at age 8 due to complications of Type 1 Diabetes. Zachary wrote this poem at school and brought it home to his parents. 

This is the very reason why HFC Kids exists… no sibling should have to feel forgotten! Help us remind kids like Zachary that he is not forgotten and that his grief matters too!